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Post by Hezz on Aug 9, 2021 20:01:12 GMT
So lovely to hear from you, Cheryl. 😘. I am envisioning a comfy chair in the back yard in the sun … I hope it was sunny for you … and enjoying your own space. Take care, take it easy.
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Post by Hezz on Aug 9, 2021 22:45:52 GMT
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Post by willowsmum on Aug 9, 2021 23:29:57 GMT
So good to hear you are up and about clt80. Fresh air and a bit of sunshine can do the world of good. Fingers crossed for the best possible results next week. As others have said, we are all thinking of you x
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Post by Shirls on Aug 10, 2021 9:52:41 GMT
A little bit of sunshine and fresh air will do wonders for you clt80. Being back home must be good also. Take it easy, our thoughts are with you.
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Post by samwiseg on Aug 10, 2021 16:16:53 GMT
The garden is always a good thing for your mind, body and soul! Perhaps you can get Adam Frost to come over whilst recovering to sort out your weeds? If I remember you were on first name terms with him, shared photos etc?
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Post by clt80 on Aug 11, 2021 7:42:55 GMT
It was such a nice change to be outside. With the isolating before the op it's been nearly 5 weeks (including time spent in hospital) and I can tell you that it drives your mind crazy not being: a) able to go out whenever you want b) your body not being able to do things it normally did. Hubby's gran summed it up nicely, she had a triple heart bypass years ago and said it's like your mind wants to do things but your body won't follow. I haven't really cried much since all this, i think I'm in survival mode but last night I felt weepy and shed a tear. I just want the results, I just need to know. On a brighter note, yes Sam i did meet Adam Frost at a gardening show once, such a nice guy. When Monty finally retires my money is on him to be the nation's head gardener ....
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Post by suesbird on Aug 11, 2021 8:17:27 GMT
Everyone needs a cry sometimes, good to let the tension out. I hope all goes well for you and keep your positive big girl pants on. Big hug coming your way. xx
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Post by ffiscool on Aug 11, 2021 9:22:04 GMT
Lovely photo.
It’s hard waiting for results especially re anything cancer related. The thing I like to think with ops, whatever they might be for, is that the surgeon pretty much has an idea when he’s operating, how things are. If anything looked untoward or hadn’t gone well, they’d say at the time or when they talk to you afterwards.
The weather is due to be mainly nice this week, so I hope you are up to spending more time in the garden 😊
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Thank you
Aug 11, 2021 11:15:32 GMT
via mobile
Post by clt80 on Aug 11, 2021 11:15:32 GMT
Yeah he did say he thinks he's got it, but he was going to take a foot of colon and the surrounding lymph nodes out, but after told me he also took a vascular section out and lymph nodes by my liver. It's the latter which is worrying me, liver and lungs are the first two organs colon cancer spreads to. Wish Monday would just hurry up
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Post by ffiscool on Aug 11, 2021 11:36:28 GMT
Hopefully as a precaution. He sounds as he’s on top of it all, but I know wait must be awful.
Can you binge watch mindless rubbish to help pass the time.
Everything still crossed for you
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Post by willowsmum on Aug 11, 2021 12:44:51 GMT
It must be so stressful waiting for the results clt80, the time will be dragging by and all of that worry on top of everything you've been through physically and the frustration of not being able to do what you normally would, it's completely understandable that you will feel low at times. You have such a positive attitude though, you are doing brilliantly well and you'll get there. Try to do whatever you can to get through the week, as ffiscool said, mainly some mindless TV would occupy your mind for short periods and time in the garden is definitely therapeutic. Or look at lots of pictures of budgies Sending big hugs and thinking of you x
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Post by ariella on Aug 11, 2021 17:56:57 GMT
Are you on the Macmillan forum, Cheryl? I used it while waiting for biopsy results on a mole that looked like melanoma and had to wait 3 weeks. I found it helpful being in a position of chatting to those in the same boat and both having support and giving support. My hubby had cancer 16 years ago and it is such a surreal time. We were both on auto-pilot and it got us through the days. It’s good you had a little cry as the tension, stress, worry and pain take their toll. Wishing you all the very best for Monday and the days in between pass quickly for you. x
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Post by tweetiepiesmom on Aug 11, 2021 20:11:52 GMT
Oh my clt80, you are so pretty! Still have everything crossed that the results turn out great. Now is the time to binge watch those silly shows you wouldn't admit to anyone that you watch. Funny how time normally flies except when waiting for results. Hope the budgies are showing you love. I've trained my little Buddy to fly to my hand when I hold it out and bob my head while making kissy sounds. He'll fluff up and kiss my thumb nail.
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Post by clt80 on Aug 12, 2021 7:16:52 GMT
Thanks ariella, I haven't contacted them yet but I did get one of their booklets (I got tons of colon cancer info booklets given to me at diagnosis and there was a MacMillan one in there that I read).
What I did do was set an Instagram page up, to follow this journey. It has proved helpful to learn and not only write about my journey but to follow others, I've learned a lot, especially about scans, the op and recovery.
However I have today decided to stop posting on there. The honest reviews from people going through chemo scare me. It sounds truly horrific. Plus, a woman I follow passed yesterday, her husband posted to let us all know and it's hit me at my core.
Almost Monday....I don't think I've ever longed for it to be a Monday in my life!!!
I'm going to try to do something with my day, either try to deadhead some plants in the garden, or get on with reading a book. I need structure. The other day I was that bored I pulled all the wound coverings off my tummy then the tape off holding the wounds together. They are sutured and glued and I can see they are knitting together and healing. I decided near 2 weeks was long enough to have this horrid tape on. They needed to breathe. I have some bio oil I've been rubbing into them, suppose to help with scars.
Sorry for the rant....😕
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Post by ariella on Aug 12, 2021 8:23:49 GMT
Rant away, though I didn’t think that was a rant at all. Sometimes people don’t always have much of a filter and it’s difficult to read the potential issues that you could but don’t want to be faced with. I don’t do any social media but the Macmillan site was good as you could literally join specific threads for specific cancers - those newly diagnosed, those post surgery and awaiting results, those discussing meds and treatment, etc. The forum is monitored carefully and Macmillan nurses often offer advice when people are having a flap. I think there’s an option to phone and talk to someone also. So there will be information on treatments but I think, though don’t quote me, that you won’t need to read it if you don’t choose to, but even if you don’t want to chat on there, it was a solid form of information. I think this limbo stage is the worst. Sometimes it’s better to know and just get on with it than deal with the nerve wracking wait for results. I’m sure you felt like that between colonoscopy and diagnosis, Sounds like your skin will thank you for removing the tape and it’s good everything is healing well. The weekend is within touching distance. Try and keep yourself occupied without doing too much strenuous activity. A tad of deadheading and reading sounds great. Maybe a favourite movie and a sweet treat too? Treat yourself, you certainly deserve to! x
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